You are here: Home / Rare Disease Information / Other Resources and Tools / Information on Clinical Trials & Research

Information on Clinical Trials & Research

Clinical Trials

Clinical Trials.Gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.

Center Watch is committed to providing patients and their advocates information on clinical trials, specific drugs, as well as other essential health and educational resources.

At Trials Central you can search for clinical trials by diseases and drugs.

The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.

The National Cancer Institute recently launched the International Clinical Trials Portal on This section of the NCI website provides a central location for online resources that will help investigators outside the United States navigate the legal and regulatory issues that come with collaborating on clinical trials with U.S.-based research groups.

NIH Clinical Research Trials and You, NIH has developed a new website to help people learn more about clinical trials, why they matter, and how to participate.

The EU Clinical Trials Register website allows you to search for information on clinical trials in European Union (EU) member states and the European Economic Area (EEA) and clinical trials which are conducted outside the EU/EEA if they form part of a paediatric investigation plan (PIP).

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .