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Resources from NORD Partners

The Raise Your Voice in Support of Myeloproliferative Neoplasm (MPN) Awareness Toolkit has been developed to help you take action to create awareness of MPNs during September when MPNs are being recognized as part of Blood Cancer Awareness Month.

The Myelofibrosis Resource Guide for patients and families was developed by the MPN Coalition, whose members are CancerCare, Cancer Support Community, Leukemia & Lymphoma Society, MPN Education Foundation, MPN Research Foundation and NORD.

The MF symptom calendar was developed by the MPN Coalition. This coalition was formed to provide a forum for discussion of an action on needs and challenges faced by those living with and affected by myeloproliferative neoplasms (MPNs). Managing your symptoms is key to good quality of life with MF. This calendar is a tool that can help you take control of your condition.

Pushing MPN Research Foward is a video detailing the story of a group of patients who have invigorated research into the blood cancers essential thrombocythemia, myelofibrosis and polycythemia, collectively known as myeloproliferative neoplasms.

 
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