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Other Resources and Tools

NORD has compiled the following links and resources that may be useful to individuals and families affected by rare diseases. NORD does not endorse any of these programs and services.  Please check your health care provider for information about additional resources. To contact a member of NORD’s information services team, please call us at (800) 999-6673 (voicemail only) or contact us here.

The resources fall into the following categories and sub-headings.

Financial and Medication Assistance Resources

Health Insurance and Medicare/Medicaid Information

Information on Newborn Screening, Genetics, and Lab Testing

Information on Clinical Trials and Research

Resources for People with Disabilities and Special Needs

Government Resources

Other Sites of Interest

Resources from NORD Partners

Resources to Find a Physician

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