Disease Information from NORD, National Organization for Rare Disorders, Inc.

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• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

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• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Abetalipoproteinemia Support Group

Address:
Ruth Gold

Phone: 480--65-9-0540
Fax: cel-l 4-80-688-9027

Abetalipoproteinemia is an online support group that disseminates information about the care and treatment of people with abetalipoproteinemia, a rare, incurable, genetic disorder characterized by the body's inability to properly absorb and transport fats. The group provides information to health professionals and the general public, as well as to affected families. It also supports parents in their quest for treatment for their children, and provides opportunities for sharing information related to the diagnosis and treatment of this very rare disorder. The only meetings are online, although members of the group may also share their telephone numbers with each other. To access this group, go to www.yahoogroups.com, register and then choose Abetalipoproteinemia Support Group.

Website: http://www.yahoogroups.com

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Last modified Wednesday, November 26, 2008