Disease Information from NORD, National Organization for Rare Disorders, Inc.

• Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Abiding Hearts

Address:
705 14th Street
Butte, MT 59701
USA

Phone: 406-782-4894
Fax: 406-587-7197
800 Number: --
TDD: 800-223-3131
Email Address: abidinghearts@yahoo.com

Abiding Hearts is a not-for-profit organization dedicated to providing support and information to parents continuing their pregnancies after prenatal testing has revealed the presence of birth defects, some of which may be life threatening. Established in 1993, Abiding Hearts provides a network of contact parents in a growing number of areas across the United States, enabling the exchange of support, information, and resources between new members and parents who have already experienced similar circumstances. Abiding Hearts also promotes patient advocacy; provides referrals to support groups and other services; and offers a variety of educational and support materials to parents and other affected family members, healthcare professionals, and the general public through its directory, brochures, reports, and its regular newsletter.

Chapters: 5

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.

Last modified Wednesday, November 26, 2008