The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Addison's Disease Self-Help Group (UK)
a/k/a:   ADSHG (UK)

Address:
P.O. Box 1083
Guildford, Surrey, GU1 9HX
UK

Phone: 084-4 5-88 2722
Email Address: info@addisons.org.uk

The Addison's Disease Self-Help Group (UK) is a non-profit organization located in the United Kingdom. It helps people, mainly in the UK, who have been affected by Addison's disease, a rare disorder characterized by chronic, usually progressive, inadequate production of the steroid hormones cortisol and aldosterone by the outer layer of cells of the adrenal glands. ADSHG (UK) works to support people with adrenal failure, and promotes better medical understanding of this rare condition. The services of ADSHG (UK) for its members include a newsletter, emergency treatment instructions, educational materials, and access to an e-mail discussion/support group.

Website: http://www.addisons.org.uk


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Last modified Wednesday, November 26, 2008