Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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• Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

• Rare Disease Database

Search this database for reports on more than 1,200 diseases.

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• Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

• Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

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Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Adult Congenital Heart Association
a/k/a: ACHA

Address:
6757 Greene Street, Suite 335
Philadelphia, PA 19119-3508
USA

Phone: 215-849-1260
Fax: 215-849-1261
800 Number: 888-921-2242
TDD: --
Email Address: info@achaheart.org

The Adult Congenital Heart Association (ACHA) is a non-profit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families, and the medical community. ACHA publishes a quarterly newsletter entitled "Heart Matters", hosts a very active message board for peer support, and periodically holds regional and national conferences at locations across the United States.

Website: http://www.achaheart.org/

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Last modified Wednesday, November 26, 2008