Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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Alagille Syndrome Alliance

Address:
10500 SW Starr Drive
Tualatin, OR 97062
USA

Phone: 503-885-0455
Fax: 503-885-0455
800 Number: --
TDD: --
Email Address: alagille@alagille.org

The Alagille Syndrome Alliance is a non-profit voluntary organization that functions as a support network for people affected by Alagille syndrome, a rare genetic disorder. Established in 1993, the Alagille Syndrome Alliance is dedicated to providing support to children with this disorder, their family members, and healthcare professionals who care for people with Alagille syndrome. The Alliance advocates for continuing medical research into the cause, prevention, and treatment of Alagille syndrome, and serves as a central location for resources related to the diagnosis and treatment of this rare disorder. The Alagille Syndrome Alliance offers a matching service to interested families as well as advice and consultation through specialists on its Medical Advisory Board.

Website: http://www.alagille.org

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Last modified Wednesday, November 26, 2008