Disease Information from NORD, National Organization for Rare Disorders, Inc.

The National Organization for Rare Disorders (NORD)

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Alberta Neurofibromatosis Association
a/k/a: ABNF

Address:
636 Hunterfield Place NW
Calgary
Alberta, T2K 4L6
Canada

Phone: 403--27-5-4894
800 Number: 866--93-9-2263
Email Address: pam@albertanf.org or cathy@albertanf.org

Alberta Neurofibromatosis Association (ABNF) is a non-profit organization whose mission is to support individuals and families affected by neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2); to educate its members, professionals, and the general public about NF; and to support NF research. NF1, also called Von Recklinghausen's disease, is a rare genetic disorder characterized by the development of multiple noncancerous (benign) tumors of nerves and skin (neurofibromas) and areas of abnormally decreased or increased coloration (hypo- or hyperpigmentation) of the skin. NF-2, a much rarer genetic disorder than NF-1, is primarily characterized by benign (noncancerous) tumors of the nerves that transmit sound impulses from the inner ears to the brain (bilateral acoustic neuromas vestibular schwannomas). The characteristic symptoms of NF-2 include balance problems, buzzing or ringing in the ears (tinnitus), and/or gradual hearing loss.

Chapters: 4
Website: http://www.albertanf.org

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Last modified Wednesday, November 26, 2008