The National Organization for Rare Disorders (NORD)

Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,200 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,200 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

**IMPORTANT** The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Albinism Fellowship

Address:
P.O. Box 77
Burnley
Lancashire, Intl BB11 5GN
United Kingdom

Phone: +44- 75-30 276291
Fax: --
800 Number: +44- 75-30 276291
TDD: --
Email Address: info@albinism.org.uk

The Albinism Fellowship is a voluntary organization that aims to provide information, advice, and support for people with albinism, parents, families, teachers, physicians, ophthalmologists, and other people with an interest in the condition. The fellowship has charitable status in Scotland. Its membership extends around the world and is networked with similar organizations in the US and Australia. The fellowship was founded in 1979 by a retired ophthalmologist.

Website: http://www.albinism.org.uk


The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.

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Last modified Wednesday, November 26, 2008