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Alternating Hemiplegia of Childhood Foundation (AHC)
a/k/a: AHCF
Address:
31250 Plymouth Rd
Livonia, MI 48150
USA
Phone: 650-365-5798
Fax: 650-365-5798
800 Number: 888-557-5757
TDD: --
Email Address: LAEgan6@sbcglobal.net
The Alternating Hemiplegia of Childhood Foundation (formally known as IFAHC) is a voluntary, non-profit organization dedicated to providing current information to affected individuals and their families. AHC is a rare neurological disorder characterized by frequent, temporary episodes of paralysis on one side of the body (hemiplegia); temporary paralysis of the muscles that control eye movement (transient ocular palsies); sudden, involuntary movements of limbs and facial muscles (choreoathetosis); and/or excessive sweating with changes in skin color and body temperature (autonomic nervous system dysfunction). Symptoms usually become apparent before the age of 18 months. High stress activities have been known to cause the attacks, as well as the presence of a cold or upper respiratory problem. Bright lights, temperature changes, and exposure to water may also affect children with AHC. Fewer than 100 children in the United States, and fewer than 250 worldwide, have been diagnosed with AHC. It is only within relatively recent years that AHC has been recognized as a distinct disorder. Many children are initially diagnosed with epilepsy or other seizure disorders. Founded in 1993 by two families who have children affected by this disorder, the organization supports ongoing medical research into the cause, treatment, and potential cure of AHC. It also disseminates information to promote proper diagnosis; maintains a registry of families, affected children, and physicians who are familiar with AHC; has a medical advisory board; and produces brochures and a regular newsletter.
Website: http://www.ahckids.org
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