NORD's
Washington Office
Read about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.
|
|
|
The National Organization for Rare Disorders (NORD) web site, its databases,
and the contents thereof are copyrighted by NORD. No part of the NORD web
site, databases, or the contents may be copied in any way, including but not
limited to the following: electronically downloading, storing in a retrieval
system, or redistributing for any commercial purposes without the express
written permission of NORD. Permission is hereby granted to print one hard
copy of the information on an individual disease for your personal use,
provided that such content is in no way modified, and the credit for the
source (NORD) and NORD’s copyright notice are included on the printed copy.
Any other electronic reproduction or other printed versions is strictly
prohibited.
The information in NORD's Rare Disease Database is for educational purposes only. It
should never be used for diagnostic or treatment purposes. If you have questions regarding
a medical condition, always seek the advice of your physician or other qualified health
professional. NORD's reports provide a brief overview of rare diseases. For more specific
information, we encourage you to contact your personal physician or the agencies listed as
"Resources" on this report.
Copyright 2009
NORD is very grateful to Petros Efthimiou, MD, FACR, Chief, Division of Rheumatology,
Lincoln Medical Center; Assistant Professor of Clinical Medicine,
Weil Cornell Medical College, for assistance in the preparation of this report.
Synonyms of Adult Onset Still’s Disease
- Adult Still’s Disease
- AOSD
- Wissler-Fanconi Syndrome
Disorder Subdivisions
General Discussion Adult onset Still’s disease (AOSD) is a rare inflammatory disorder that affects the entire body (systemic disease). The cause of the disorder is unknown (idiopathic). Affected individuals may develop episodes of high, spiking fevers, a pink or salmon colored rash, joint pain, muscle pain, a sore throat and other symptoms associated with systemic inflammatory disease. The specific symptoms and frequency of episodes vary from one person to another and the progression of the disorder is difficult to predict. In some individuals, the disorder appears suddenly, disappears almost as quickly and may not return. In other people, adult onset Still’s disease is a chronic, potentially disabling, condition. Various medications are used to treat individuals with adult onset Still’s disease; affected individuals may respond to therapy differently. Adult onset Still’s disease does not appear to run in families.
Adult onset Still’s disease is the adult form of systemic juvenile rheumatoid arthritis (juvenile Still’s disease). The disorders are name after a British physician who first described systemic juvenile rheumatoid arthritis in the medical literature in 1896. The term “adult Still’s disease” was first used in the medial literature in 1971, but cases that fit the description of the disorder appear in the medical literature as early as the late 1800s.
Organizations related to Adult Onset Still’s Disease
- Arthritis Foundation
1330 West Peachtree Street
Atlanta GA 30309
Phone #: 404-872-7100
800 #: 800-568-4045
e-mail: help@arthritis.org
Home page: http://www.arthritis.org
- Arthritis Society
393 University Avenue
Suite 1700 Toronto Ontario Intl M5G IE6
Phone #: 416-979-7228
800 #: 800-321-1433
e-mail: info@arthritis.ca
Home page: http://www.arthritis.ca
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-519-3194
800 #: 888-205-2311
e-mail: gardinfo@nih.gov
Home page: http://www.genome.gov/10000409
- NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
|
|