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Copyright 2003
Synonyms of Alveolar Capillary Dysplasia
Disorder Subdivisions
General Discussion
Alveolar capillary dysplasia (ACD) is a rare, likely congenital, disorder of the lungs (pulmonary system) and especially of the blood system serving the lungs. It is a disorder of the newborn. The normal diffusion process of oxygen from the air sacs to the blood in the lungs and, thence, to the heart, fails to develop properly. The disorder is sometimes called misalignment of the pulmonary veins. Rather than misaligned, the pulmonary vein is malpositioned in a site somewhat different from its normal position.
Infants with the disorder present with the signs of lack of oxygen (hypoxemia) and severely increased pulmonary hypertension.
Since treatment is seldom, if ever, effective, life expectancy of the infant is very, very, short.
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Organizations related to Alveolar Capillary Dysplasia
- Alveolar Capillary Dysplasia Association
c/o Steve and Donna Hanson
5902 Marcie Court
Garland TX 75044-4958
Phone #: N/A
800 #: --
e-mail: sdesj@verizon.net
Home page: http://www.acd-association.com
- American Lung Association
1301 Pennsylvania Ave. NW
Washington DC 20004
Phone #: 202-785-3355
800 #: 800-586-4872
e-mail: info@lungusa.org
Home page: http://www.lungusa.org
- Fetal Hope Foundation
9786 S Holland Street
Littleton CO 80127
Phone #: 303-932-0553
800 #: 877-789-4673
e-mail: info@fetalhope.org
Home page: http://www.fetalhope.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Home page: http://rarediseases.info.nih.gov/GARD
- Infants Remembered In Silence, Inc. (IRIS)
101 Third Street NW
Faribault MN 55021
Phone #: 507-334-4748
800 #: N/A
e-mail: support@irisremembers.com
Home page: http://www.irisRemembers.com
- MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
- Share Pregnancy & Infant Loss Support, Inc.
402 Jackson Street
Saint Charles MO 63301
Phone #: 636-947-6164
800 #: 800-821-6819
e-mail: info@nationalshare.org
Home page: http://www.nationalshare.org
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