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"Resources" on this report.
Copyright 1987, 1989, 1997, 1998, 2005, 2008
NORD is very grateful to Bita Esmaeli, MD, FACS, Associate Professor, Director, Ophthalmic Plastic & Reconstructive Surgery Fellowship Program, Section of Ophthalmology, Department of Head and Neck Surgery, M. D. Anderson Cancer Center, for assistance in the preparation of this report.
Synonyms of Tolosa Hunt Syndrome
- Ophthalmoplegia, Painful
- Ophthalmoplegia, Recurrent
- Ophthalmoplegia Syndrome
Disorder Subdivisions
General Discussion
Tolosa-Hunt syndrome is a rare disorder characterized by severe headaches and pain around the sides and back of the eye, along with weakness and paralysis (ophthalmoplegia) of certain eye muscles. Symptoms usually affect only one side of the head (unilateral). In most cases, affected individuals experience intense sharp pain and paralysis of muscles around the eye. Symptoms subside without intervention (spontaneous remission) and recur without a distinct pattern (randomly). In addition, affected individuals may exhibit paralysis (palsy) of certain facial nerves and drooping of the upper eyelid (ptosis). Other symptoms may include double vision, fever, chronic fatigue, headaches, a feeling that one's surroundings are spinning (vertigo), pain in the joints (arthralgia), and/or abnormal protrusion of one or both eyeballs (exophthalmos). The exact cause of Tolosa-Hunt syndrome is not known, but the disorder is thought to be associated with inflammation of the areas behind the eyes (cavernous sinus and superior orbital fissure).
Organizations related to Tolosa Hunt Syndrome
- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: aarda@aarda.org
Home page: http://www.aarda.org/
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: bandrews@autoimmunitycommunity.org
Home page: http://autoimmunitycommunity.org
- Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-251-4925
800 #: 888-205-2311
e-mail: ordr@od.nih.gov
Home page: http://rarediseases.info.nih.gov/Default.aspx
- National Association for Visually Handicapped
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: staff@navh.org
Home page: http://www.navh.org
- National Headache Foundation
820 North Orleans
Suite 217
Chicago IL 60610-3132
Phone #: N/A
800 #: 888-643-5552
e-mail: info@headaches.org
Home page: http://www.headaches.org
- National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda MD 20824
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: me20t@nih.gov
Home page: http://www.ninds.nih.gov/
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