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Aug. 16, 2016

TOPIC: Research

NORD Announces Research Grants Available for Study of Rare Diseases

Posted by Jennifer Huron
nord-2016-rfp-sp

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to study rare diseases. NORD’s 2016 research grant funding is available for the study of:

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins – One (1) grant of up to $50,000, for scientific and/or clinical research studies related to Alveolar Capillary Dysplasia (ACD/MPV). See full RFP and abstract proposal template here.
  • Appendix Cancer and Pseudomyxoma Peritonei – Two (2) grants of up to $50,000 for scientific and/or clinical research studies related to Appendix Cancer and/or Pseudomyxoma Peritonei (PMP). See full RFP and abstract template here.
  • Autoimmune Polyglandular Syndrome Type 1 – One (1) grant of up to $100,000 for scientific and/or clinical research studies related to Autoimmune Polyglandular Syndrome Type 1 (APS Type 1). See full RFP and abstract template here.
  • Homocystinuria – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Homocystinuria due to Cystathionine Beta-Synthase Deficiency. See full RFP and abstract template here.
  • Malonic Aciduria – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Malonic Aciduria. See full RFP and abstract template here.
  • Stiff Person Syndrome – One (1) grant of up to $30,000 for scientific and/or clinical research studies related to Stiff Person Syndrome. See full RFP and abstract template here.

These grants are made possible by donations to NORD. In some cases, the grants are co-sponsored by NORD and disease-specific patient organizations. NORD encourages all U.S. and international researchers interested in studying these diseases to consider applying.

The objective of the NORD Research Grant Program is to encourage meritorious scientific and clinical studies that will ultimately lead to new diagnostics, treatments, and/or cures for rare (also called “orphan”) diseases or disorders. The studies funded with NORD research grants provide preliminary data on drugs, devices or medical foods that researchers may then use to attract funding from government or industry sponsors to pursue further clinical studies. Two of NORD’s previous research grants have resulted in FDA-approved orphan products to treat rare diseases.

A rare disease is defined as one that affects fewer than 200,000 people in the U.S. There are 7,000 rare diseases that combined affect 30 million Americans, or 1 in every 10 people, more than half of whom are children. The majority of rare diseases have no treatment.

For more information about NORD’s research grant program and rare disease research funding opportunities, visit:http://rarediseases.org/research.

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7 Responses to “NORD Announces Research Grants Available for Study of Rare Diseases”

  1. Gladys V Range says:

    I am interested in participating in research grant program . Specifically mobile and automated clinical trial design, planning, recruiting and management .
    Demographics, sample test and subject life cycle management.

  2. Cynthia Schofield says:

    I am interested in any FYI from patients/families who have experienced myxofibrosarcoma of soft tissue with metastasis to the lung.

  3. Cindy Fleming says:

    My daughter was diagnosed with polychondritis earlier this year. Her physician diagnosed the condition although she continues with severe systoms. Disease affects two of a million people. Doctor had to read up on diagnosis and treatment. Is there any research on this disease.

  4. Esmeralda says:

    Hello, I have stress induced gastritis and ulcers I want to start an organization to find a cure for mentally induced digestive issues. Please my life has come to a standstill and college is not a priority for me now.

  5. Amanda says:

    Ive been diagnosed with Chiari malformation, at 9.5 below tonsils, Addison’s disease, mood disorder, steroid induced diabetic , migraines blurred visions ,hypertension, Raynaud’s, anxiety edema. etc., the list goes on, I’m actually interested in any of the opportunity to be a part of this research since there is soo little the drs seem to know.

  6. Judith Luna says:

    Why isn’t VKH taken seriously. This rare disease took away my life. Please can someone give me resources or support groups for VKH

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