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2018 NORD Membership Renewal

Thank you for being a NORD member. Your participation enables us to keep advancement in rare diseases strong, safe and promising while protecting patients’ access to trusted educational resources and adequate medical care and services.

Please complete the annual renewal process for 2018 NORD Membership so that we can work together in 2018 to make even greater progress.

Renewals will close on Monday, February 19
Questions may be directed to Lori Oppenheimer at

Benefits to 2018 Renewal

Renewing members receive a flash drive with 4 major plenary session audio recordings and 34 slide presentations from NORD’s 2017 Rare Diseases and Orphan Products Breakthrough Summit on topics like:

  • Fundraising
  • FDA involvement
  • Early diagnosis
  • Next Generation Treatments
  • Advancing Clinical Trials
  • And much more!

Resources for Members

  • 1 million visitors online to NORD’s website
  • 50,000 fans on Facebook
  • 25,000 followers on Twitter
  • 2 million healthcare professionals in publication partnerships with Frontline Medical Communications

Exchange ideas with more than 660 CEOs, Executives, Directors, Founders, Board Chairs and other leaders through NORD:

  • 170 executives and leaders post on our exclusive Facebook Member Group
  • 100s of leaders network regionally and nationally at NORD-organized events

Attend calls, webinars and in-person meetings focused on capacity building including:

  • Board Management
  • Fundraising
  • Drug Development
  • Research and Registries
  • Engaging Medical Professionals

Join us for sign-on letters, webinars, and more to share updates with your community

Feedback from NORD Members

“I would have quit… without the support you have provided.”
– Erica Barnes,
Chloe’s Fight Rare Disease Foundation

 “NORD is a great convener.  We have met industry partners through NORD and we ask all our industry partners to work with NORD, to learn about legislation and to support the rare disease community as a whole.”
– Julie Raskin
Congenital Hyperinsulinism International

“NORD is our experienced parent. If we need guidance, we ask and receive it in no time.”
– Rachel Gomel,
PSC Partners Seeking a Cure

In the spring of 2017, NORD was happy to offer Member Organizations with free tickets to the World Orphan Drug Congress.
Hear from Gina Parziale, Executive Director of Alport Syndrome Foundation who talks about her experience at the conference.