Thank you for being a NORD member. Your participation enables us to keep advancement in rare diseases strong, safe and promising while protecting patients’ access to trusted educational resources and adequate medical care and services.
Please complete the annual renewal process for 2018 NORD Membership so that we can work together in 2018 to make even greater progress.
Renewals will close on Monday, February 19
Questions may be directed to Lori Oppenheimer at firstname.lastname@example.org
Renewing members receive a flash drive with 4 major plenary session audio recordings and 34 slide presentations from NORD’s 2017 Rare Diseases and Orphan Products Breakthrough Summit on topics like:
Exchange ideas with more than 660 CEOs, Executives, Directors, Founders, Board Chairs and other leaders through NORD:
Attend calls, webinars and in-person meetings focused on capacity building including:
Join us for sign-on letters, webinars, and more to share updates with your community
“I would have quit… without the support you have provided.”
– Erica Barnes,
Chloe’s Fight Rare Disease Foundation
“NORD is a great convener. We have met industry partners through NORD and we ask all our industry partners to work with NORD, to learn about legislation and to support the rare disease community as a whole.”
– Julie Raskin
Congenital Hyperinsulinism International
“NORD is our experienced parent. If we need guidance, we ask and receive it in no time.”
– Rachel Gomel,
PSC Partners Seeking a Cure
In the spring of 2017, NORD was happy to offer Member Organizations with free tickets to the World Orphan Drug Congress.
Hear from Gina Parziale, Executive Director of Alport Syndrome Foundation who talks about her experience at the conference.