Oct. 13, 2017
Posted by Jennifer Huron
Danbury, CT and Washington, D.C., October 13, 2017—Do you know a person or company that is making a difference in the fight against rare diseases? Submit a nomination for the 2018 Rare Impact Awards by January 12: rarediseases.org/rare-impact-awards.
The Rare Impact Awards celebrates efforts to help the 30 million Americans with rare diseases who, by the very nature of their diagnoses, may be overlooked by traditional medicine, research and healthcare policies. Awards are presented in May at the annual Gala Celebration and fundraiser, hosted by the National Organization for Rare Disorders (NORD)®, the leading independent advocacy organization representing all patients and families affected by rare diseases.
“We are honored to bring together the community and supporters for this special event,” said NORD president and CEO Peter L. Saltonstall. “People who dedicate their lives to rare diseases must overcome obstacles to make a difference. We look forward to sharing their inspiring stories and renewing our shared commitment to further progress.”
In recognition of the 35th anniversaries of NORD and the Orphan Drug Act, the 2018 Rare Impact Awards will be given out in four categories that match the four pillars of the NORD’s mission, with two awards issued in each category:
- Patient Assistance
A committee of NORD staff and Board of Directors will review the nominations and determine the winners, who will join the esteemed company of previous honorees that include patients, caregivers, patient advocacy groups, researchers, healthcare professionals, legislators, regulators, bioethicists and innovators.
Winners will be recognized at the 2018 Rare Impact Awards Gala Celebration and fundraiser on May 17 in Washington, D.C. To learn more, visit rareimpact.org/awards.