Policy Statements & Letters to Policymakers

For decades, NORD has pursued federal and state policies to improve the lives of Americans impacted by rare diseases. This page is updated daily to provide timely information on our policy efforts. Please contact [email protected] if you have questions or need additional information. 

NORD Issues Letter of Support for Vermont H.46 (Stone) to Establish the Vermont Rare Disease Advisory Council (RDAC)

Published: Jan 29, 2025
Tagged in: Rare Disease Advisory Councils (RDACs)

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NORD Responds to Proposed Amendments Offered by Health Plans to Step Therapy Provisions of Vermont H.766 (Black)

Published: Apr 18, 2024
Tagged in: Access to Affordable Medicines Access to Affordable, Adequate Coverage Access to Innovative Medicines and Therapies Utilization Management

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NORD Sends Letter of Support to Vermont Senate Health for H.766 Relating to Step Therapy Reforms

Published: Mar 27, 2024
Tagged in: Access to Affordable Medicines Access to Affordable, Adequate Coverage Access to Innovative Medicines and Therapies Utilization Management

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NORD Sends Letter of Support to the Vermont House for Provisions of Vermont H.766 Relating to Step Therapy Requirements

Published: Mar 12, 2024
Tagged in: Access to Affordable Medicines Access to Affordable, Adequate Coverage Access to Innovative Medicines and Therapies

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NORD Sends a Letter of Support for Vermont House Bill 573 – Establishes a Rare Disease Advisory Council

Published: Jan 4, 2024
Tagged in: Rare Disease Advisory Councils (RDACs)

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