For decades, NORD has pursued federal and state policies to improve the lives of Americans impacted by rare diseases. This page is updated daily to provide timely information on our policy efforts. Please contact [email protected] if you have questions or need additional information.
NORD Urges New Mexico to Join the Interstate Medical Licensure Compact
Published: Mar 13, 2025
Tagged in: Telehealth
NORD Issues Letter of Support for Give Kids A Chance Act and Telehealth Modernization Act
Published: Sep 17, 2024
Tagged in: Access to Affordable Medicines
Access to Affordable, Adequate Coverage
Access to Innovative Medicines and Therapies
Telehealth
NORD submits comments in response to RFI on Cures 2.0
Published: Aug 2, 2024
Tagged in: Access to Affordable Medicines
Access to Affordable, Adequate Coverage
Access to Diagnostics
Access to Innovative Medicines and Therapies
Advancing Rare Disease Research and Regulatory Science
FDA’s Accelerated Approval Pathway
Telehealth
NORD Issues Letter of Support for North Carolina Bill HB681 Joining the Interstate Medical Licensure Compact (IMLC)
Published: May 14, 2024
Tagged in: Telehealth
NORD Supports SB5821 in Washington to Protect Audio-Only Telehealth Services
Published: Mar 5, 2024
Tagged in: Telehealth
NORD joins leading patient and provider groups in urging Congress to act on telehealth
Published: Feb 22, 2024
Tagged in: Telehealth
NORD Supports Access to Out-of-State Telehealth Providers for Coloradans with Support of SB24-141
Published: Feb 21, 2024
Tagged in: Telehealth
NORD Submits Written Testimony in Support of Audio-Only Telehealth Services in Washington
Published: Jan 9, 2024
Tagged in: Telehealth
NORD joins 30 other patient organizations in opposition to H.R. 824, the Telehealth Benefit Expansion for Workers Act of 2023
Published: Jul 12, 2023
Tagged in: Telehealth
NORD and other patient and provider groups sign onto a one-pager to express support for HB 4131, legislation that would improve telehealth access in MI
Published: Apr 12, 2023
Tagged in: Telehealth
NORD submits comments to the Hawaiʻi House Committee on Finance in support of SB 674, a bill to adopt the Interstate Medical Licensure Compact
Published: Mar 29, 2023
Tagged in: Telehealth
NORD submits comments to the Hawaiʻi House Committee on Health & Homelessness in support of SB 674, a bill to adopt the Interstate Medical Licensure Compact
Published: Mar 15, 2023
Tagged in: Telehealth
NORD submits comments to the Missouri House Committee on Professional Registration and Licensing in support of HB 285, a bill to adopt the Interstate Medical Licensure Compact
Published: Feb 21, 2023
Tagged in: Telehealth
NORD submits comments to the Hawaiʻi Senate Committee on Health & Human Services in support of SB 674, a bill to adopt the Interstate Medical Licensure Compact
Published: Feb 10, 2023
Tagged in: Telehealth
NORD submits comments on the CONNECT for Health Act and other telehealth legislation
Published: Jan 31, 2023
Tagged in: Telehealth
NORD joins 375 organizations urging Senate leadership to take action on telehealth
Published: Sep 13, 2022
Tagged in: Telehealth
NORD submits written testimony to Alaska House Finance Committee in support of HB 265, an act related to telehealth services in the state.
Published: Apr 14, 2022
Tagged in: Telehealth
NORD submits written testimony to CT Public Health Committee in support of Senate Bill 375 to extend the expansion of telehealth services until June 30, 2024
Published: Mar 30, 2022
Tagged in: Telehealth
NORD joins hundreds of organizations in establishing a pathway for comprehensive telehealth reform
Published: Jan 31, 2022
Tagged in: Telehealth
NORD and 23 patient organizations send letter to members of the Ohio Senate urging the rapid passage of HB 122
Published: Nov 3, 2021
Tagged in: Telehealth
NORD, along with the ALS Association, the Alliance for Connected Care and 235 other patient organizations call on governors to protect access to telehealth
Published: Oct 28, 2021
Tagged in: Telehealth
NORD testimony to the Ohio Senate Health Committee in support of House Bill 122 that would would make permanent provisions related to telehealth
Published: Sep 29, 2021
Tagged in: Telehealth
NORD joins a letter to Congressional Leaders with over 400 organizations supporting permanent telehealth Medicare reforms
Published: Jul 26, 2021
Tagged in: Telehealth
NORD testimony to the Delaware Senate Health and Social Services Committee in support of House Bill 160 that would expand telehealth access with a few modifications
Published: May 11, 2021
Tagged in: Telehealth
NORD statement to the House Ways and Means Committee for the Health Subcommittee Hearing: “Charting the Path Forward for Telehealth”
Published: Apr 28, 2021
Tagged in: Telehealth