Scroll
To Top
About
News
Events
Contact
donate
Menu
for
Patients and Families
Information & Resources
Rare Disease Information
Resources & FAQs
State Health Insurance Information
Information for Your Doctor
Information on Clinical Trials and Research Studies
Undiagnosed Rare Disease Patients
Help to Access Medications
Patient Assistance Programs
Other Financial Assistance
Connect with Others
Find a Patient Organization
Rare Disease Day®
Patient Stories
Take Action
Attend Events
Advocate
Support
Close
for
Patient Organizations
Join Membership Network
Value of Membership
Membership Criteria
Apply for Membership
For Current Members
Member Resources
Regional Meetings
Webinar Series
Other Ways to Partner
Grow your organization
Patient Registries
Advocacy
Rare Disease Day
Membership Profiles
About our Members
Member List
Close
for
Industry
Corporate Council
About the Corporate Council
Current Members
Meeting Schedule
Council Code of Conduct
Join the Council
Patient Support Opportunities
Patient Organization Programs
Rare Action Network®
Event Sponsorship
Summit
Rare Impact Awards
Rare Disease Day®
Education & Research Programs
Physician Guides
Rare Disease Reports
Natural History Study Patient Registries
Research Grant Program
Close
for
Clinicians and Researchers
Resources
Resources for Medical Professionals
Rare Disease Information
Resources for your Patients
Continuing Medical Education
Research Opportunities
Research Grant Program
Requests for Proposals
Research Grant Recipients
Connect
Lend Your Expertise
Rare Disease Day
Close
Advocate
Our Policy Priorities
Policy Issues
Policy Statements
National Partnerships
Contact Your Representatives
Take Action Locally
Join the Rare Action Network®
State Report Card
RareInsights™
5 Myths About Orphan Drugs and the Orphan Drug Act
Close
Get Involved
Donate Now
Give
Ways to Give
Donate to Research
Educate
Educational Initiatives
Raise Awareness
Identify Rare Disease Experts
Join
Participate in Events
Become a Member
Employment Opportunities
Close
Search Results for:
H
0-9
•
A
•
B
•
C
•
D
•
E
•
F
•
G
•
H
•
I
•
J
•
K
•
L
•
M
•
N
•
O
•
P
•
Q
•
R
•
S
•
T
•
U
•
V
•
W
•
X
•
Y
•
Z
Hailey-Hailey Disease
Haim-Munk Syndrome
Hairy Cell Leukemia
Hajdu Cheney Syndrome
Hallermann Streiff Syndrome
Hanhart Syndrome
Hantavirus Pulmonary Syndrome
Hartnup Disease
Hashimoto Encephalopathy
Heart Block, Congenital
Heavy Metal Poisoning
Hemimegalencephaly
Hemophagocytic Lymphohistiocytosis
Hemophilia A
Hemophilia B
Henoch-Schönlein Purpura
Hepatic Encephalopathy
Hepatocellular Carcinoma
Hepatoerythropoietic Porphyria
Hepatopulmonary Syndrome
Hepatorenal Syndrome
Hereditary Angioedema
Hereditary Breast and Ovarian Cancer Syndrome
Hereditary Coproporphyria
Hereditary Hemorrhagic Telangiectasia
Hereditary Hyperphosphatasia
Hereditary Leiomyomatosis and Renal Cell Carcinoma
Hereditary Lymphedema
Hereditary Multiple Osteochondromas
Hereditary Neuralgic Amyotrophy
Hereditary Orotic Aciduria
Hereditary Sensory and Autonomic Neuropathy Type 1E
Hereditary Sensory and Autonomic Neuropathy Type II
Hereditary Sensory and Autonomic Neuropathy Type IV
Hereditary Sensory Neuropathy Type I
Hereditary Spastic Paraplegia
Hermansky Pudlak Syndrome
Herpes, Neonatal
Hers Disease
Hiccups, Chronic
Hidradenitis Suppurativa
Hirschsprung Disease
Histidinemia
Hodgkin’s Disease
Holoprosencephaly
Holt Oram Syndrome
Homocystinuria due to Cystathionine Beta-Synthase Deficiency
Horner’s Syndrome
HTLV Type I and Type II
Human Granulocytic Ehrlichiosis (HGE)
Human HOXA1 Syndromes
Human Monocytic Ehrlichiosis (HME)
Huntington’s Disease
Hutchinson-Gilford Progeria
Hydranencephaly
Hydrocephalus
Hyper IgM Syndrome
Hyperekplexia
Hyperemesis Gravidarum
Hyperferritinemia Cataract Syndrome
Hyperhidrosis, Primary
Hyperlipoproteinemia Type III
Hyperostosis Frontalis Interna
Hyperprolinemia Type I
Hyperprolinemia Type II
Hypochondroplasia
Hypohidrotic Ectodermal Dysplasia
Hypokalemia
Hypomelanosis of Ito
Hypoparathyroidism
Hypophosphatasia
Hypoplastic Left Heart Syndrome
Hypothalamic Hamartoma
