Resource Library Search Results

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023

Get Involved, Rare Cancer, Understanding Rare Disease

Published September 27, 2023

Rare Cancer Day Webinar 2023 – Companion PowerPoint

Advocacy, Rare Cancer

NORD RareInsights^® Rare Cancer Facts

Rare Cancer, Understanding Rare Disease

Published October 7, 2021

Rare Cancers: Breaking Down Barriers to Diagnosis, Treatment and Research

Rare Cancer, Understanding Rare Disease

Published December 1, 2020

2020 Rare Diseases Report: Cancers

Gene Therapy, Research & Drug Development, Understanding Rare Disease

Published October 14, 2020

Just for You: Genomic Testing and Personalized Care for Rare Cancers

Understanding Rare Disease

Published June 1, 2021

Rare Cancer Facts

Advocacy

Published June 15, 2023

Rare Diseases Report: Cancers

Advocacy, Regulatory, Telehealth, Understanding Rare Disease

NORD RareInsights^® Ensuring Access to Telehealth for Rare Diseases

RDCA-DAP, Research & Drug Development

Accelerating Rare Disease Drug Development: Rare Disease Challenges in Each Step of the Drug Development Process.

RDCA-DAP, Research & Drug Development

Accelerating Rare Disease Drug Development: RDCA-DAP – Shortening the Timeline for Developing New Treatments for Rare Diseases

Diversity, Equity & Inclusion

Published December 8, 2023

Latinos & Rare Diseases: Building Equitable Access in the Rare Disease Community

Advocacy, Research & Drug Development

Published December 13, 2024

How To Advocate For Rare Disease-Related Policies: A Guide for Professionals Involved in Diagnosis, Care, or Research of Rare Diseases

Gene Therapy

Gene Therapy Day 1, Session 1 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)

Gene Therapy

Gene Therapy Day 1, Session 2 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)

Gene Therapy

Gene Therapy Day 2, Session 2 HCP Session – NORD (National Organization for Rare Disorders) (rarediseases.org)

Understanding Rare Disease

Published March 21, 2021

Advocating For A Rare Disease Advisory Council In Your State

Global Campaign Assets, Rare Disease Day

Rare Disease Day Logos

Merchandise, Rare Disease Day

Rare Disease Day Store

Global Campaign Assets, Rare Disease Day

Rare Disease Day Style Guide

Rare Disease Day

Rare Disease Day Zoom Backgrounds

General Resources and Activities, Rare Disease Day

Rare Disease Day Trivia

Get Involved, Understanding Rare Disease

Finding & Connecting with Others in the Rare Community

Understanding Rare Disease

Published November 15, 2019

10 Thing You May Not Know About Rare Diseases

Understanding Rare Disease

Published March 28, 2019