News Rare Action Network’s Maria Bellefeuille Interviewed by Patient Empowerment Network Leading up to Living Rare Forum
News Rare Action Network: NORD and Patient Groups in Oregon Seek to Reduce Out-of-Pocket Drug Costs for Patients
Policy Statement NORD and Rare Action Network Volunteers submit written testimony in support of Florida Rare Disease Advisory Council (RDAC) legislation
Policy Statement Rare Action Network Volunteer Ambassador submit written testimony in support of Arkansas Rare Disease Advisory Council (RDAC) legislation
Policy Statement NORD and Rare Action Network Volunteers submit written testimony in support of New Jersey Rare Disease Advisory Council (RDAC) legislation
Policy Statement NORD and Rare Action Network Volunteer submit written testimony in support of Virginia Rare Disease Advisory Council (RDAC) legislation
Policy Statement Rare Action Network Volunteer Ambassador written testimony in support of Louisiana Rare Disease Advisory Council (RDAC)
Policy Statement NORD and Rare Action Network Volunteer Ambassador testimony to the South Carolina House Subcommittee I, Health and Environmental Affairs in support of House Bill 3956 to establish an RDAC
Policy Statement NORD and Rare Action Network Volunteers submit written testimony to the Florida House Professions and Public Health Subcommittee in support of House Bill 1373 to establish an RDAC
Policy Statement NORD and Rare Action Network Volunteer Ambassador testimony to the Maine Joint Health and Human Services Committee with suggested amendments in support of Legislative Document 972 to establish an RDAC
Policy Statement NORD and Rare Action Network Volunteer Ambassador testimony to the Michigan House Health Policy Committee in support of House Bill 4654 to establish an RDAC
Policy Statement NORD and Rare Action Network Volunteer State Ambassador submitted testimony to the New Jersey General Assembly in support of Assembly Bill 4016 to establish an RDAC