News NORD Appoints Genetics and Metabolic Specialist Marshall L. Summar M.D. as Chairman of the Board
Policy Statement NORD and other patient organizations urge CMS to host listening sessions for Inflation Reduction Act implementation
Policy Statement NORD letter in support of California Senate Bill 643, a bill to add Duchenne muscular dystrophy to the list of medical conditions eligible for the Genetically Handicapped Persons Program
Policy Statement NORD provides comments in support of the FDA’s Patient Focused Drug Development Listening Meeting ‘Methods and Approaches for Capturing Post-Approval Safety and Efficacy Data on Cell and Gene Therapy Products’
Policy Statement NORD submits recommendations to CMS on improving the Medicare Drug Price Negotiation Program (MDPNP) Patient Listening Sessions
News NORD Announces 2024 Rare Impact Award Honorees, Emmy Award-Winning Journalist, Peter Alexander to Host