For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins patient advocacy organizations in urging Congress to establish an out-of-pocket (OOP) cap for Medicare Part D to limit the amount Medicare beneficiaries have to pay for covered prescription drugs
Published: Sep 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
NORD Submits Comments to Reps. DeGette and Upton on 21st Century Cures 2.0 Discussion Draft
Published: Jul 26, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Access to Diagnostics, Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science, COVID-19
Coalition statement asking that the Administration rescind policies that would jeopardize access to medically necessary prescription drugs.
Published: Feb 4, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
NORD letter to Virginia lawmakers on ensuring access to medications through the state Medicaid program.
Published: Nov 20, 2020
Tagged in: Access to Affordable Medicines
Medicare Part D Open Enrollment guide from the MAPRx Coalition
Published: Oct 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
NORD comments to CMS regarding proposed changes to price reporting requirements under the Medicaid Drug Rebate Program.
Published: Jul 21, 2020
Tagged in: Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
