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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

Coalition letter to President-Elect Biden outlining recommendations to ensure affordable and accessible health coverage during the COVID-19 pandemic.

Published: Nov 23, 2020
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Coalition comments in responses to the Committee on Health, Education, Labor and Pensions (HELP) “Preparing for the Next Pandemic” white paper.

Published: Jun 26, 2020
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Coalition letter asking the Centers for Medicare and Medicaid Services to provide flexibility to Medicare Advantage and Prescription Drug Plan sponsors to waive the use of step therapy requirements during the COVID-19 pandemic

Published: May 29, 2020
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