For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 73 organizations urges CMS to reinstate step therapy prohibition in Medicare Advantage plans for Part B drugs
Published: May 31, 2022
Tagged in: Access to Innovative Medicines and Therapies, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins Friends of Cancer Research and 50 other organizations in letter to the Senate supporting the nomination of Dr. Robert Califf to be Commissioner of the FDA
Published: Dec 1, 2021
Tagged in: Access to Innovative Medicines and Therapies, Advancing Rare Disease Research and Regulatory Science