For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 34 patient organizations representing millions of people living with serious and chronic health conditions statement regarding the Supreme Court’s ruling upholding the Affordable Care Act
Published: Jun 17, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD joins several patients groups in a statement to Congress to urge them to include health care affordability measures in the next legislative package
Published: May 6, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD joins a coalition letter with over 30 patient organizations to Congressional leadership outlining health care priorities for the next legislative package
Published: Apr 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
NORD joins a coalition letter with over 30 patient advocacy organizations to President Biden outlining health care priorities for the next legislative package
Published: Apr 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
NORD joins three other patient groups in a amicus brief opposing Data Marketing Plan arrangements that would be harmful for the rare disease community
Published: Apr 7, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD joins several patient organizations to present a report on junk plans titled “Under-Covered: How Insurance-Like Products are Leaving Patients Exposed
Published: Mar 25, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Short-Term, Limited-Duration Health Plans and Association Health Plans
