For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 31 patient organizations urge Congress to close the Medicaid coverage gap and extend enhanced APTCs as part of the Build Back Better Act
Published: Oct 12, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins a statement with other patient advocacy groups commending the House Energy and Commerce and Ways and Means Committees for expanding access to adequate and affordable health care in the reconciliation legislation
Published: Sep 17, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD and other patient advocacy organizations ask Congressional leadership to make the enhanced advanced premium tax credits permanent and address the Medicaid coverage gap in the reconciliation package
Published: Sep 10, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD joins a letter with several other patient organizations asking House and Senate leadership to prioritize making the advance premium tax credits permanent in the reconciliation package
Published: Aug 3, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option
Published: Jul 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins comments to the Administration on the Improving Health Insurance Markets Proposed Rule, which addresses some of the policies in the 2022 NBPP and strengthens the ACA marketplaces
Published: Jul 28, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
