For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits amicus brief for State of New York vs. United States Department of Health and Human Services opposing the rule promulgated by HHS that allows discrimination in provision of health care servicesRead full statement >
Coalition statement urging the U.S. Supreme Court to prioritize patient protections, including those for people with pre-existing conditions, when it hears oral arguments Tuesday in the case of California v. Texas.Read full statement >