For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins with American Academy of Pediatrics and 18 organizations in letter to Congressional Appropriators to support the Pediatric Device Consortia Grant Program at FDA
Published: Nov 8, 2021
Tagged in: Appropriations, Access to Pediatric Therapies
NORD, MDA, and FARA letter to House and Senate Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittee on supporting rare disease programs at NCATS in FY22
Published: Nov 10, 2021
Tagged in: Appropriations, Ensuring Adequate Funding for NIH, Advancing Rare Disease Research and Regulatory Science
NORD joins with 10 organizations in letter to Congressional Appropriators to support the Pediatric Device Consortia Grant Program at FDA
Published: Mar 26, 2021
Tagged in: Appropriations, Devices for Small Populations
NORD, MDA, and FARA letter to the Senate Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittee on supporting rare disease programs at NCATS in FY22
Published: Sep 15, 2021
Tagged in: Appropriations, Ensuring Adequate Funding for NIH, Advancing Rare Disease Research and Regulatory Science
NORD appropriations priorities for Fiscal Year 2022-chart
Published: Aug 10, 2021
Tagged in: Appropriations
NORD Appropriations Priorities for Fiscal Year 2022
Published: Jul 29, 2021
Tagged in: Appropriations
