For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD, MDA, and FARA Letter to the Senate Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittee on Supporting Rare Disease Programs at NCATS in FY22
Published: Sep 15, 2021
Tagged in: Appropriations, Ensuring Adequate Funding for NIH, Advancing Rare Disease Research and Regulatory Science
NORD Appropriations Priorities for Fiscal Year 2022-Chart
Published: Aug 10, 2021
Tagged in: Appropriations
NORD Appropriations Priorities for Fiscal Year 2022
Published: Jul 29, 2021
Tagged in: Appropriations
NORD Joins Leukemia & Lymphoma Society and Over 110 Other Organizations to Support Consumer Assistance Program Funding in Fiscal Year 2022 Labor, HHS Appropriations
Published: Apr 26, 2021
Tagged in: Appropriations, Access to Affordable, Adequate Coverage
NORD, American Heart Association, and 50 other Patient Organizations Sign on to Letter to Senate Labor, HHS Subcommittee on Appropriations Requesting Increased Funding for CDC’s National Center for Chronic Disease Prevention and Health Promotion
Published: Mar 17, 2021
Tagged in: Appropriations
NORD, American Heart Association, and 50 other Patient Organizations Sign on to Letter to House Labor, HHS Subcommittee on Appropriations Requesting Increased Funding for CDC’s National Center for Chronic Disease Prevention and Health Promotion
Published: Mar 17, 2021
Tagged in: Appropriations
