NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act
Published: Aug 5, 2022
Tagged in: Appropriations, Affordable Care Act
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act
Published: Aug 5, 2022
Tagged in: Appropriations, Affordable Care Act
NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill
Published: May 16, 2022
Tagged in: Appropriations
NORD and 87 other patient organizations call on Congressional leaders to provide robust funding for Consumer Assistance Programs
Published: May 4, 2022
Tagged in: Appropriations
NORD joins with American Academy of Pediatrics and 16 organizations in letter to Congressional Appropriators to support the Pediatric Device Consortia Grant Program at FDA
Published: Apr 27, 2022
Tagged in: Appropriations, Access to Pediatric Therapies
NORD joins with American Academy of Pediatrics and 18 organizations in letter to Congressional Appropriators to support the Pediatric Device Consortia Grant Program at FDA
Published: Nov 8, 2021
Tagged in: Appropriations, Access to Pediatric Therapies
NORD, MDA, and FARA letter to House and Senate Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittee on supporting rare disease programs at NCATS in FY22
Published: Nov 10, 2021
Tagged in: Appropriations, Ensuring Adequate Funding for NIH, Advancing Rare Disease Research and Regulatory Science