Coalition Letter to Senate Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Appropriations, Newborn Screening
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition Letter to Senate Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Appropriations, Newborn Screening
Coalition Letter to House Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Appropriations, Newborn Screening
Coalition letter to Congress regarding appropriations for the Pediatric Device Consortia (PDC) Grant Program
Published: Apr 18, 2019
Tagged in: Appropriations, Access to Pediatric Therapies, Access to Innovative Medicines and Therapies
Alliance for a Stronger FDA letter to Congress regarding FDA appropriations
Published: Jul 10, 2018
Tagged in: Appropriations, Access to Innovative Medicines and Therapies, Protecting FDA Standards for Safe and Effective Drugs
NORD comments regarding funding for newborn screening in Texas’ Legislative Appropriations Request
Published: Jun 21, 2018
Tagged in: Appropriations, Newborn Screening, Access to Diagnostics
Coalition letter urging the House to adopt the Senate Appropriations Committee’s funding levels for outreach and enrollment in marketplace coverage under the Affordable Care Act
Published: Oct 12, 2017
Tagged in: Appropriations, Access to Affordable, Adequate Coverage, Affordable Care Act