For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD sends letter urging President Biden and Vice President Harris to include medical nutrition as a topic of discussion for the September 2022 Conference on Hunger, Nutrition, and Health.
Published: Jul 11, 2022
Tagged in: Copay Assistance, Medical Nutrition
NORD and more than 140 organizations submit letter of support for H.R. 5801, the ‘HELP Copays Act’
Published: Nov 29, 2021
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition letter to Chair of the Oregon Senate Committee on Health Care regarding copay assistance
Published: Feb 2, 2021
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition letter to Michigan House Ways and Means Committee in support of HB 5944, a bill regarding copay assistance.
Published: Nov 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition letter to Massachusetts Budget Conferees requesting extension of the state law allowing the use of manufacturer copay assistance.
Published: Nov 23, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
NORD letter to the Ohio House Health Committee in support of HB 469, a bill regarding copay accumulators.
Published: Nov 10, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
