For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD, the ALS Association, Muscular Dystrophy Association and Cystic Fibrosis Foundation letter to CDC Director, Dr. Rochelle Walensky, requesting additional guidance from CDC to ensure rare disease patients have access to the COVID-19 vaccine
Published: Feb 17, 2021
Tagged in: Access to Care, COVID-19
Coalition Statement in Support of Medicaid Coverage Provisions in COVID-19 Relief Package
Published: Feb 11, 2021
Tagged in: Access to Care, COVID-19
Coalition Statement to the House Ways and Means committee on COVID-19 relief measures
Published: Feb 10, 2021
Tagged in: Access to Care, COVID-19
Patient Community Priorities for Future COVID-19 Legislation
Published: Feb 1, 2021
Tagged in: COVID-19
Patient Community Health Care Priorities for Reconciliation
Published: Feb 1, 2021
Tagged in: Access to Affordable, Adequate Coverage, COVID-19
Coalition Press Release Urging Connecticut Department of Health to Issue Guidance Prevent Discriminatory Rationing of COVID-19 Care
Published: Jan 26, 2021
Tagged in: Anti-discrimination, COVID-19
