NORD, the ALS Association, Muscular Dystrophy Association and Cystic Fibrosis Foundation letter to CDC Director, Dr. Rochelle Walensky, requesting additional guidance from CDC to ensure rare disease patients have access to the COVID-19 vaccine
Read full statement >Coalition Statement in Support of Medicaid Coverage Provisions in COVID-19 Relief Package
Read full statement >Coalition Statement to the House Ways and Means committee on COVID-19 relief measures
Read full statement >Coalition Press Release Urging Connecticut Department of Health to Issue Guidance Prevent Discriminatory Rationing of COVID-19 Care
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