For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration, and urging the state to reinstate retroactive eligibility for beneficiaries.
Published: Jun 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition comments urging CMS to reject Oklahoma application for a Section 1115 waiver containing numerous policies that jeopardize patients’ access to care in the Medicaid program.
Published: Jun 24, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD comments to CMS opposing Oklahoma’s application for a Section 1115 waiver containing numerous policies that jeopardize patients’ access to care in the Medicaid program.
Published: Jun 25, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition comments to CMS regarding Indiana’s Section 1115 waiver
Published: Mar 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition letter to CMS in opposition to its recent proposal to begin allowing states to apply for a block grant style of funding
Published: Mar 9, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition statement in opposition to CMS’ new proposal to allow for block grant funding of Medicaid
Published: Jan 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
