For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins coalition letter with 19 additional patient organizations to HHS opposing Oklahoma’s request to eliminate retroactive eligibility for Medicaid patients
Published: Apr 22, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD joins a coalition amicus curiae brief to the United States Supreme Court opposing the use of work requirements in the Medicaid program.
Published: Feb 24, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition comment letter on proposed extension of Arizona’s 1115 Demonstration Project
Published: Feb 4, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition letter to HHS opposing the fast-tracking of Texas’s 1115 waiver proposal.
Published: Jan 13, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition letter to incoming Administration urging the immediate recension of guidance to state Medicaid programs regarding work and community engagement requirements.
Published: Jan 8, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD comments on the draft proposal for the five-year renewal of Arizona’s Demonstration project under Section 1115 of the Social Security Act.
Published: Nov 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
