For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD comments on the draft proposal for the five-year renewal of Arizona’s Demonstration project under Section 1115 of the Social Security Act.
Published: Nov 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition statement on the approval of Georgia’s 1115 waiver and pending approval of the state’s 1332 waiver, which reduce access to comprehensive health insurance for patients.
Published: Oct 16, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers, Section 1332 Waivers
Coalition comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration.
Published: Sep 14, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Patient group letter urging HHS to take action on pending Section 1115 demonstration waivers to address racial disparities.
Published: Jul 22, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration, and urging the state to reinstate retroactive eligibility for beneficiaries.
Published: Jun 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
Coalition comments urging CMS to reject Oklahoma application for a Section 1115 waiver containing numerous policies that jeopardize patients’ access to care in the Medicaid program.
Published: Jun 24, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
