For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 31 patient organizations urge Congress to close the Medicaid coverage gap and extend enhanced APTCs as part of the Build Back Better Act
Published: Oct 12, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and coalition partners release the 2022 Medicare Part D Open Enrollment Guide
Published: Oct 8, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and coalition partners urge NY policymakers to ensure that patients who remain eligible for Medicaid coverage maintain their access to care at the end of the COVID-19 public health emergency
Published: Sep 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins patient advocacy organizations in urging Congress to establish an out-of-pocket (OOP) cap for Medicare Part D to limit the amount Medicare beneficiaries have to pay for covered prescription drugs
Published: Sep 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
NORD joins a letter with other patient organizations to Chairwoman Murray and Chairman Pallone regarding their request for information to design a public health insurance option
Published: Jul 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 22 organizations submitted an amicus curiae brief in the Missouri Supreme Court on the vital role that the implementation of Medicaid expansion would have in the lives of hundreds of thousands of Missourians
Published: Jun 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
