For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 22 organizations submitted an amicus curiae brief in the Missouri Supreme Court on the vital role that the implementation of Medicaid expansion would have in the lives of hundreds of thousands of Missourians
Published: Jun 30, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 13 patient organizations submit letter opposing language within the proposed budget that would harm access to care for Ohioans with Medicaid coverage
Published: Jun 15, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and seven other patient organizations send a letter to Members of the Ohio Senate Oversight and Reform Committee expressing continued concern that SB17 would harm access to health care for patients
Published: May 26, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and seven other patient groups release statement strongly opposing decision to halt Medicaid expansion in Missouri
Published: May 14, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD endorsement of the Accelerating Kids Access to Care Act, a bill that would ensure that children with Medicaid who require care out of state will not face unnecessary delays.
Published: May 11, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage, Out-of-State Care for Children on Medicaid
NORD joins a coalition letter with over 30 patient organizations to Congressional leadership outlining health care priorities for the next legislative package
Published: Apr 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
