For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 23 patient organizations ask Congressional leadership to address the Medicaid coverage gap and make enhanced APTCs permanent through budget reconciliation
Published: May 20, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 24 patient organizations submit recommendations to the Centers for Medicare and Medicaid Services (CMS) in response to the Request for Information: Access to Coverage and Care in Medicaid and CHIP
Published: Apr 18, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 13 patient organizations urge Congressional leadership to take action to address the high out-of-pocket costs in the Medicare Part D program
Published: Mar 15, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage, Out of Pocket Prescription Drug Costs
NORD and 28 national patient organizations send letter to Congressional Leaders urging them to continue to work to enact policies that expand access to quality and affordable healthcare in the budget reconciliation process
Published: Feb 11, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 26 patient groups praise House passage of legislation that extends quality, affordable health coverage to millions
Published: Nov 19, 2021
Tagged in: Access to Affordable, Adequate Coverage, Paid Leave, Medicare Home Infusion, Medicare, Medicaid, and Private Health Insurance Coverage, Out of Pocket Prescription Drug Costs
NORD and 31 patient organizations urge Congress to close the Medicaid coverage gap and extend enhanced APTCs as part of the Build Back Better Act
Published: Oct 12, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
