For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD comment letter on a proposed new definition of “reasonable and necessary” to help determine coverage of items and services under Medicare.
Published: Nov 2, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Medicare Part D Open Enrollment guide from the MAPRx Coalition
Published: Oct 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Access to Affordable Medicines, Medicare, Medicaid, and Private Health Insurance Coverage
Comment letter on the telehealth provisions of the FY 2021 Medicare Physician Fee Schedule
Published: Oct 2, 2020
Tagged in: Medicare, Medicaid, and Private Health Insurance Coverage, Telehealth
Coalition Comments to the Administration on the proposed Grandfathered Plans rule.
Published: Aug 14, 2020
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition Comments Regarding New Mexico’s Excepted Benefits Proposed Rule.
Published: Aug 12, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition letter in response to the Internal Revenue Service proposed regulations that would treat payments made to health care sharing ministries and direct primary care arrangements as medical expenses under IRS code.
Published: Aug 10, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
