For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins a coalition letter with over 30 patient organizations to Congressional leadership outlining health care priorities for the next legislative package
Published: Apr 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
NORD joins a coalition letter with over 30 patient advocacy organizations to President Biden outlining health care priorities for the next legislative package
Published: Apr 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act, Medicare, Medicaid, and Private Health Insurance Coverage, Short-Term, Limited-Duration Health Plans and Association Health Plans
NORD and coalition partners release press statement regarding the Missouri Senate Budget Committee’s failure to appropriate funding for Medicaid Expansion
Published: Apr 22, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and coalition partners one pager in support of Illinois House Bill 1779 to require coverage of biomarker testing
Published: Mar 25, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 13 additional patient organizations submit letter expressing continued support for Medicaid expansion in Arkansas
Published: Mar 17, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD Ambassador testimony opposing Ohio Senate Bill 17 to the Government Oversight and Reform Committee
Published: Feb 24, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
