For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition comments to CMS expressing concerns about the Medicaid fiscal accountability proposal and its potential to lead to significant cuts
Published: Jan 31, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition letter to CMS requesting a meeting to discuss several concerns about recent policies
Published: Jan 17, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition comments to CMS in opposition to its proposal to revoke a rule that helps ensure access in Medicaid
Published: Sep 13, 2019
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD comments to Montana to extend and amend its Health and Economic Livelihood (HELP) Demonstration Program
Published: Aug 20, 2019
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
NORD comments to CMS regarding the new technology add-on payment program
Published: Jun 24, 2019
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
Coalition comments regarding the Office of Management and Budget’s (OMB) actions to potentially change the index for the calculation of inflation for the federal poverty line
Published: Jun 21, 2019
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage
