For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition letter to the Centers for Medicare and Medicaid Services supporting the inclusion of a mechanism to spread out Medicare Part D out-of-pocket costs over the course of a year in the Part D Modernization Model
MAPRx coalition letter urging Congress to take action to reverse an unintended dramatic increase in Medicare Part D out-of-pocket costs that is set to occur in 2020