For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD endorsement of the Accelerating Kids Access to Care Act, a bill that would ensure that children with Medicaid who require care out of state will not face unnecessary delays.
Published: May 11, 2021
Tagged in: Access to Affordable, Adequate Coverage, Medicare, Medicaid, and Private Health Insurance Coverage, Out-of-State Care for Children on Medicaid
Stakeholder letter endorsing the Accelerating Kids Access to Care Act, to improve access to out-of-state providers for children with complex medical conditions in Medicaid.
Published: Oct 20, 2020
Tagged in: Access to Affordable, Adequate Coverage, Out-of-State Care for Children on Medicaid
NORD comments to CMS regarding its request for information on coordinating care from out-of-state providers for Medicaid eligible children with medically complex conditions
Published: Mar 23, 2020
Tagged in: Access to Affordable, Adequate Coverage, Out-of-State Care for Children on Medicaid
