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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

Coalition letter to the Department of Health and Human Services and Congressional Leaders outlining coalition telehealth principles.

Published: Sep 11, 2020
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NORD’s letter of endorsement for H.R. 7078, the Evaluating Disparities and Outcomes of Telehealth During the COVID-19 Emergency Act.

Published: Aug 13, 2020
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