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Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

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Policy Statements

NORD joined with over 300 stakeholders in support of improving telehealth access during and after the COVID-19 pandemic.

Published: Jun 29, 2020
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NORD comments in responses to the Committee on Health, Education, Labor and Pensions (HELP) “Preparing for the Next Pandemic” white paper.

Published: Jun 26, 2020
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NORD letter to Governors asking that they loosen their state licensure requirements to better facilitate telemedicine across state lines

Published: Mar 26, 2020
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