For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD submits written testimony to the California Assembly Committee on Health in support of Assembly Bill 1880 to improve utilization management protocols.
Published: Apr 5, 2022
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD joins 84 organizations in submitting comments to the Healthy Futures Task Force on the issue of step therapy
Published: Mar 16, 2022
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD and 66 other patient organizations submit a letter to the New York Governor urging support for Senate Bill 4111/Assembly Bill 4668, legislation to prohibit non-medical switching
Published: Oct 13, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD letter to CA Governor Newsom in support of California AB 347, step therapy reform legislation
Published: Sep 17, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD submits testimony to the Massachusetts Joint Committee on Health Care Financing in support of Senate Bill 756 and House Bill 1311 , step therapy reform legislation
Published: Jul 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation
Published: Jun 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
