For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 66 other patient organizations submit a letter to the New York Governor urging support for Senate Bill 4111/Assembly Bill 4668, legislation to prohibit non-medical switching
Published: Oct 13, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD letter to CA Governor Newsom in support of California AB 347, step therapy reform legislation
Published: Sep 17, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD submits testimony to the Massachusetts Joint Committee on Health Care Financing in support of Senate Bill 756 and House Bill 1311 , step therapy reform legislation
Published: Jul 9, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD signs onto a coalition letter of support with 17 other patient organizations in support of California AB 347, step therapy reform legislation
Published: Jun 23, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD submits letter of support to the PA Senate Banking and Insurance Committee in support of Senate Bill 225, step therapy and prior authorization reform legislation
Published: Jun 22, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD submits letter of support to Rhode Island’s Speaker of the House in support of Senate Bill 302/House Bill 5704, step therapy reform legislation
Published: Jun 15, 2021
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
