For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition comments on the Patient Protection and Affordable Care Act and the Notice of Benefit and Payment Parameters for 2022
Published: Dec 28, 2020
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
Coalition comments on the Notice of Benefit and Payment Parameters 2022 proposed rule
Published: Dec 29, 2020
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
Coalition comments on changes to Medicaid maintenance of effort requirements that could lead to gaps in coverage
Published: Dec 18, 2020
Tagged in: Access to Care, COVID-19
NORD comments on the Notice of Benefit and Payment Parameters for 2022 proposed rule
Published: Dec 22, 2020
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD Letter to Advisory Committee on Immunization Practices (ACIP) Regarding Rare Disease Patient Vaccine Prioritization
Published: Dec 18, 2020
Tagged in: COVID-19
Patient Groups Call on Congress to Permanently End Surprise Medical Billing
Published: Dec 16, 2020
Tagged in: Access to Affordable, Adequate Coverage, Surprise Medical Billing
