Coalition letter to Congress in support of the Protecting Access to Post-COVID-19 Telehealth Act of 2020 (HR 7663)
Published: Aug 3, 2020
Tagged in: Telehealth, COVID-19
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition letter to Congress in support of the Protecting Access to Post-COVID-19 Telehealth Act of 2020 (HR 7663)
Published: Aug 3, 2020
Tagged in: Telehealth, COVID-19
Coalition statement calling on Congress to end surprise medical billing.
Published: Jul 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Surprise Medical Billing
Coalition letter to Congressional leaders on COVID-19 legislative priorities for patients.
Published: Jul 28, 2020
Tagged in: Access to Care, Paid Leave, Telehealth, COVID-19
NORD letter of support for the adoption of amendment #71 in House Bill 4888 in Massachusetts to the House Majority Leader, Ways and Means Chair, and Joint Health Care Financing Chair.
Published: Jul 28, 2020
Tagged in: Rare Disease Advisory Councils (RDACs)
Coalition letter to Nevada Health Committee Chair in support of step therapy reform.
Published: Jul 24, 2020
Tagged in: Access to Affordable, Adequate Coverage, Utilization Management
NORD comments to Georgia regarding the state’s Section 1332 waiver application.
Published: Jul 23, 2020
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers