For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Comment Letter from NORD on the Hospital Inpatient Prospective Payment Systems for Acute Care Hospitals and Long Term Care Hospital Prospective Payment System and Proposed Policy Changes and Fiscal Year 2021 Rates.
Published: Jul 13, 2020
Tagged in: Medicare, Medicaid, and Private Health Insurance Coverage
NORD one pager on Rare Disease Advisory Councils (RDACs).
Published: Jul 9, 2020
Tagged in: Rare Disease Advisory Councils (RDACs)
Coalition letter to Massachusetts Health Policy Commission regarding copay assistance.
Published: Jul 2, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition statement on the House passage of the Patient Protection and Affordable Care Act Enhancement Act.
Published: Jun 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
Example of a coalition letter sent to all states urging them to take action on the copay accumulator issue in light of the final NBPP rule.
Published: Jun 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
NORD comments opposing Florida’s request to extend its current Medical Managed Assistance 1115 demonstration, and urging the state to reinstate retroactive eligibility for beneficiaries.
Published: Jun 30, 2020
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
