Coalition press release to call for government decisions to be based solely on evidence, not politics
Published: Sep 22, 2020
Tagged in: COVID-19
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition press release to call for government decisions to be based solely on evidence, not politics
Published: Sep 22, 2020
Tagged in: COVID-19
NORD joins ad in support of government decisions on COVID-19 being based solely on scientific evidence.
Published: Sep 25, 2020
Tagged in: COVID-19
Coalition comments on HHS proposed guidance practices
Published: Sep 16, 2020
Tagged in: Access to Affordable, Adequate Coverage
Coalition one pager on Michigan copay accumulators.
Published: Sep 21, 2020
Tagged in: Access to Affordable, Adequate Coverage, Copay Assistance
Coalition comments to the Department of Health and Human Services and Department of the Treasury regarding Georgia’s 1332 waiver application.
Published: Sep 18, 2020
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
Coalition Letter to Senate Appropriations Committee on Support for Newborn Screening Program
Published: Sep 9, 2020
Tagged in: Newborn Screening