Coalition comments on changes to Medicaid maintenance of effort requirements that could lead to gaps in coverage
Published: Dec 18, 2020
Tagged in: Access to Care, COVID-19
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
Coalition comments on changes to Medicaid maintenance of effort requirements that could lead to gaps in coverage
Published: Dec 18, 2020
Tagged in: Access to Care, COVID-19
NORD Letter to Advisory Committee on Immunization Practices (ACIP) Regarding Rare Disease Patient Vaccine Prioritization
Published: Dec 18, 2020
Tagged in: COVID-19
Coalition letter to Montana Governor Bullock regarding the state’s draft crisis standards of care
Published: Dec 11, 2020
Tagged in: Anti-discrimination, COVID-19
Coalition letter to New Mexico Governor Lujan Grisham regarding the state’s draft crisis standards of care
Published: Dec 11, 2020
Tagged in: Anti-discrimination, COVID-19
Coalition letter to Oklahoma Governor Stitt regarding the state’s draft crisis standards of care
Published: Dec 11, 2020
Tagged in: Anti-discrimination, COVID-19
Coalition letter asking Congress to fund research, development, and vital public health agencies.
Published: Dec 2, 2020
Tagged in: Funding for Ongoing Science, COVID-19