Scroll
To Top

Policy Statements

For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.

Filter Statements

  • Filter by Year

  • Filter by Type

  • Filter by Category

Policy Statements

NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill

Published: May 16, 2022
Tagged in:

Read full statement >

NORD and 88 patient organizations send letter to Congressional leaders urging them to improve clinical trial diversity as part of PDUFA reauthorization

Published: May 11, 2022
Tagged in:

Read full statement >