NORD and other patient organizations urge Congressional leadership to include the PASTEUR Act in the end-of-year package
Published: Nov 16, 2022
Tagged in: Funding for Ongoing Science, Advancing Rare Disease Research and Regulatory Science
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and other patient organizations urge Congressional leadership to include the PASTEUR Act in the end-of-year package
Published: Nov 16, 2022
Tagged in: Funding for Ongoing Science, Advancing Rare Disease Research and Regulatory Science
NORD and the Medical Nutrition Equity Coalition sends letter to Senate leadership to include the MNEA in the end-of-year legislative package
Published: Nov 14, 2022
Tagged in: Medical Nutrition
NORD and the Medical Nutrition Equity Coalition sends letter to House leadership to include the MNEA in the end-of-year legislative package
Published: Nov 14, 2022
Tagged in: Medical Nutrition
NORD sends letter with 125 other patient organizations to ask Congressional leadership to reauthorize Title V programs and pass necessary reforms to benefit patients
Published: Nov 14, 2022
Tagged in: User Fee Act, Orphan Drug Act
NORD joins 8 patient organizations to improve coverage affordability in New Mexico
Published: Nov 8, 2022
Tagged in: Access to Affordable, Adequate Coverage, Out of Pocket Prescription Drug Costs
NORD joins other patient organizations in opposing the Professional Employer Organization Registration Act
Published: Oct 27, 2022
Tagged in: Affordable Care Act