NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act
Published: Aug 5, 2022
Tagged in: Appropriations, Affordable Care Act
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 26 organizations send letter to Congressional leadership to applaud expansion of APTC within the Inflation Reduction Act
Published: Aug 5, 2022
Tagged in: Appropriations, Affordable Care Act
NORD and 98 organizations send letter to Congressional leadership to resume negotiations to develop a comprehensive FDA user fee package
Published: Aug 1, 2022
Tagged in: User Fee Act
NORD and 34 other organizations submit feedback on Medicare Part D in the Inflation Reduction Act of 2022
Published: Aug 4, 2022
Tagged in: Medicare, Medicaid, and Private Health Insurance Coverage
NORD and 23 organizations release statement on Kelley v Beccerra case that threatens preventative services
Published: Jul 22, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD and 70 other organizations urge Senate HELP and House Energy and Commerce leadership to address clinical trial diversity in the PDUFA reauthorization
Published: Jul 11, 2022
Tagged in: User Fee Act, Clinical Trials
NORD sends letter urging President Biden and Vice President Harris to include medical nutrition as a topic of discussion for the September 2022 Conference on Hunger, Nutrition, and Health.
Published: Jul 11, 2022
Tagged in: Copay Assistance, Medical Nutrition
