NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill
Published: May 16, 2022
Tagged in: Appropriations
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD joins Research!America and other health care organizations in urging Congress to sustain federal funding for medical and public health research in the FY23 omnibus appropriations bill
Published: May 16, 2022
Tagged in: Appropriations
NORD and 13 patient organizations submit a letter in support of Alaska’s 1332 reinsurance waiver demonstration
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Section 1332 Waivers
NORD and ten patient organizations submit comments in support of Connecticut’s Section 1115 waiver application
Published: May 13, 2022
Tagged in: Access to Affordable, Adequate Coverage, Medicaid Section 1115 Waivers
NORD and dozens of patient advocacy organizations urge Congress to make the enhanced APTCs permanent
Published: May 18, 2022
Tagged in: Access to Affordable, Adequate Coverage, Affordable Care Act
NORD and 14 other patient organizations send a letter to Governor Polis urging him to sign SB 186 into law, legislation to establish a CO Rare Disease Advisory Council
Published: May 12, 2022
Tagged in: Rare Disease Advisory Councils (RDACs)
NORD and 88 patient organizations send letter to Congressional leaders urging them to improve clinical trial diversity as part of PDUFA reauthorization
Published: May 11, 2022
Tagged in: User Fee Act