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Tools and Resources

Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

Resources to help you start or grow your patient organization. View resources >

Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • Nicole’s Gastroschisis Story

    “Any research into gastroschisis would be wonderful, not only for those who continue to be born with this, but for those who are living with the ongoing complications of this defect.”

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  • NORD Announces Four New Board Members

    “Our four newest Board members each embody the spirit of collaboration central to NORD’s mission and bring experience, talent and energy to the table.”

    Read more >

  • Rare Caregiver Respite: Leah’s Story

    “Although I love my son and would not trade our lives for anything, every once in a while it is important to get away and do something ‘normal.'”

    Read more >

  • Rare Caregiver Respite: Debra’s Story

    “It was such a blessing to know that my Mom was being well taken care of while I was away. Thank you so much NORD for providing this opportunity for me and other deserving caregivers!”

    Read more >