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NORD Summit LMS State Report Card MedicAlert RDACs

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Search NORD’s Database for reports on more than 1,200 diseases. Search database >

Find free webinars, fact sheets, infographics and other helpful materials. View resources >

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Visit our new platform where rare disease patients can fundraise, communicate and advocate.  Start now >

NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication. View programs >

The international advocacy day to bring widespread recognition of rare diseases as a global health challenge.  Visit site >


  • NORD Statement on User Fee Reauthorization and Continuing Resolution

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  • Honoring Steven Matthews This Rare Cancer Day

    “The Chondrosarcoma Foundation is sharing the story of firefighter Steven Mathews in honor of Rare Cancer Day”

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  • Rare Cancer Day 2022 Showcases Critical Community Awareness and Advocacy

    “September 30 is Rare Cancer Day!”

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  • NORD Opens Applications for Three New Rare Disease Research Grants

    “The NORD Jayne Holtzer Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and clinical research”

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