NORD Developing 20 Natural History Studies for 20 Rare Diseases
NORD to Build and Launch 20 Natural History Studies Based on Lottery System
Read morePublished December 9, 2015 by NORD
NORD to Build and Launch 20 Natural History Studies Based on Lottery System
Read morePublished December 7, 2015 by NORD
Connecting patients with Pachyonychia Congenita, PC Project says that it is “all about love”.
Read morePublished December 4, 2015 by NORD
When you or a beloved family member is facing serious illness, the last thing you need to be concerned with is how you will pay for the medication.
Read morePublished December 4, 2015 by NORD
Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that …
Continue reading “New SIDS Study Says Other Factors May Increase Risk”
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
Read morePublished November 23, 2015 by NORD
The National Brain Tumor Society Tumor is a non-profit organization whose mission is to inspire hope and provide leadership within the brain tumor community.
Read morePublished November 20, 2015 by NORD
Next week, a Food and Drug Administration panel of experts will hold the first of two meetings to review two drugs designed to slow the muscle wasting effects associated with Duchenne …
Read morePublished November 17, 2015 by NORD
The National Organization for Rare Disorders (NORD) today urged the Senate HELP Committee to move quickly to advance the confirmation of Robert Califf, M.D., as the next Commissioner of the …
Continue reading “NORD Supports Nomination of Dr. Califf for FDA Commissioner”
Read morePublished November 16, 2015 by NORD
Dedicated to breaking the isolation of patients and families affected by cutis laxa, a rare genetic disorder of the connective tissue.
Read morePublished November 15, 2015 by NORD
As Shannon tells her story, she starts with “we.” Shannon was born with a twin sister, Lauryn, who at twenty days of age contracted meningitis and was later diagnosed with …
Continue reading “Living Bella Soul”
Read moreBy continuing to use this website, you agree to the Terms & Conditions and Privacy Policy.