Feb. 28, 2017
Posted by Jennifer Huron
Danbury, Conn., February 28, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, announced a year-long awareness campaign for rare disease.
Kicking off today—Rare Disease Day 2017—“Do Your Share for Rare” features the voices and stories of many living with a rare disease, to inspire and encourage those living outside of the community to get involved in ways big or small.
The first-ever community-driven public service announcement launched today to kick off the campaign, driving viewers to DoYourShare.com, a supporting website featuring community stories, an opportunity for those living with a rare disease or those involved in the community to share their story, and ways to get involved in areas ranging from awareness and advocacy to research and donation. NORD is encouraging all site visitors to share stories and content via Twitter and Facebook.
“For those living with a rare disease, the awareness, education, and support of others is paramount,” said Peter L. Saltonstall, President and CEO of NORD. “’Do Your Share for Rare’ is an attempt at more widespread awareness, which for someone living with a rare disease, means a great deal.”
Throughout the year, DoYourShare.com will be updated to include more community stories, supporting NORD’s 34-year mission of providing education, advocacy, patient support and research to help all people with rare diseases. There are approximately 7,000 known rare diseases, most of which are life-altering and do not yet have a treatment.