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Aug. 15, 2017

TOPIC: Advocacy, Events, Featured News, Get Involved, Industry, Medical, Patients & Members

Advance the Dialogue at the NORD Rare Summit

Posted by Christina Jensen
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It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare disease stakeholders come together to advance the dialogue on these and other emerging issues, policies and strategies that will affect the environment for rare diseases and orphan products.

That is why I am urging you to attend NORD’s 2017 Rare Diseases and Orphan Products Breakthrough Summit this October 16-17 in Washington, D.C.
Why attend?
Creating a culture of conversation, education, and engagement around the debate in our nation’s healthcare system, the NORD Rare Summit is the place for YOU to interact with leaders from the FDA, NIH, patient advocacy groups, medical professionals, the orphan product industry and your colleagues. At NORD, we value your personal and professional insights and participation to help establish an inclusive environment of meaningful inspiration and collaboration.
The keynotes
As you may have read, this year’s event will feature parent advocate, award-winning journalist, and founder/CEO of The Mighty, Mike Porath; and the new Commissioner of the Food and Drug Administration, Dr. Scott Gottlieb. The keynotes are a pinnacle example of the viewpoints and topics that will be discussed at the summit this year.
What else can you expect?
NORD, our members, our sponsors and you continue to play an integral role in advocating for the rare disease patient community. In support of our mutual commitment, we are proud to present:

  • Over 20 roundtable topics each day
  • Six breakout tracks
  • 96 speakers discussing topics from guidelines to next-generation treatments to advancing global collaboration
  • Poster sessions highlighting groundbreaking innovation and emerging research
  • Countless networking opportunities available through our networking app, Converve

I urge you to be part of the conversation and debates as we work together to drive improvement and progress. As an incentive, we are pleased to offer advanced pricing until August 25View the agenda and start planning today!
I look forward to greeting you in person.
Peter L. Saltonstall
President and CEO
National Organization for Rare Disorders (NORD)


NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest multi-stakeholder event in rare diseases.
The NORD Rare Summit takes place in Washington, D.C. October 16 -17. 

We hope you can join us! Learn more and register today.

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