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Archives for: October 11th, 2018

NORD IAMRARE HI Global Registry Launched

Written by Christina Jensen on October 9, 2018

Yesterday, a NORD Member Organization and IAMRARE™ Registry Client, Congenital Hyperinsulinism International (CHI), officially launched their patient registry, HI Global Registry. NORD’s IAMRARE Registry Program was built to address the special needs of those developing treatments for rare diseases with extensive input from FDA, NIH,… Read More

NORD Seeks Proposals for CME Partnership

Written by Christina Jensen on October 8, 2018

The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.

 

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Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Written by Christina Jensen on September 12, 2018
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