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Archives for: November 13th, 2017

NORD Issues Statement on Nomination of Alex Azar for Secretary of the Department of Health and Human Services

Written by Lisa Phelps on November 13, 2017
Washington, D.C., November 8, 2017 — Peter Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement today in support of Alex Azar’s nomination for Secretary of the Department of Health and… Read More

NORD Issues Statement on the Senate passage of the Food and Drug Administration Reauthorization Act of 2017

Written by Lisa Phelps on August 3, 2017

Washington, D.C., August 3, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the Senate passage of the Food and Drug Administration Reauthorization Act of 2017:

“Today the Senate joined the House in… Read More

NORD Issues Statement on the Latest ACA Repeal and Replace Developments

Written by Lisa Phelps on July 28, 2017

Washington, D.C., July 28, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest efforts to repeal and replace the Affordable Care Act:

“In the early hours of the morning, the Senate voted down… Read More