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Archives for: November 3rd, 2015

Living with Seizure Disorder

Written by Lisa Sencen on November 3, 2015

In July of 1999, Andrew Ablondi was born to two loving and excited first-time parents. Although the pregnancy was uneventful, the delivery was long and Andrew arrived with a misshapen head, a swollen and bruised face, and he struggled to breathe. On his second day, Rachel, Andrew’s mother, had trouble… Read More

They Said things like, “She’ll Grow Out of It”

Written by Lisa Sencen on October 28, 2015

Abigail MacCurtain was born a happy and healthy baby girl in the winter of 2011, despite being born at 35 weeks due to Premature Rupture of Membranes (PROM). The only notable problems were a large birthmark on her head and a failed Auditory Brainstem Response (ABR) Test, but medical professionals… Read More

From Mother to Daughter

Written by Lisa Sencen on October 1, 2015

“Although this horrible rare disease has taken a lot of time away from normal life, my family and I are blessed for every breath, every smile, and every rainy day! We choose to get up, put our feet on the ground, and love life.”

Rhonda Avins-Powers knew from… Read More

Jill Zeigler’s Story: Life with aHUS

Written by Lisa Sencen on September 24, 2015

“I am married and have a 9-year-old daughter. They were my motivation to keep fighting and get well.”

At age 28, sudden kidney failure changed Jill Zeigler’s life. After weeks spent in and out of different hospitals, Zeigler finally learned what the cause had been: an extremely rare disease… Read More