Published April 25, 2022 by NORD
April 25, 2022, Washington DC—-The National Organization for Rare Disorders (NORD) today issued a statement of tribute to the life and service of the late Senator Orrin Hatch (R-UT), who …
Continue reading “NORD Pays Tribute to Life and Service of Senator Orrin Hatch”
Read morePublished April 19, 2022 by NORD
Clayton, MO, April 19, 2022 —Today, April 19, 2022, The Snow Foundation for Wolfram Syndrome Research and the National Organization for Rare Disorders, Inc. launched the largest-ever study to research …
Read morePublished April 8, 2022 by NORD
90 Patient Organizations Sign-on to NORD Letters to Secretary Becerra and Congressional Leaders on Strengthening the Accelerated Approval Pathway April 8, 2022, Washington, DC – This week, the National Organization …
Read morePublished March 15, 2022 by NORD
NORD’s Rare Impact Award ceremony on June 26 will honor all those making strides to improve the lives of patients and families in the rare disease community Cleveland, OH, March …
Read morePublished March 3, 2022 by NORD
NORD Releases New Toolkit to Inform and Guide Patient Advocacy Groups to Improve and Prioritize Equity and Accessibility in the Rare Disease Community Washington, DC, March 3, 2022— Today, the National …
Continue reading “Navigating Diversity, Equity and Inclusion in Rare Disease Nonprofits”
Read morePublished February 28, 2022 by NORD
NORD, the official US sponsor of Rare Disease Day, is a leading voice raising awareness among the public and decision-makers about the challenges faced by the rare disease community February …
Continue reading “The Most Important Holiday Most Don’t Know: Celebrating Rare Disease Day”
Read morePublished February 22, 2022 by NORD
NORD’s State Report Card Provides Critical Analysis Across Nine Policy Areas, Including Telehealth, Drug Costs, Medicaid Eligibility, and More February 22, 2022, Washington, DC – Today, the National Organization for …
Continue reading “A Rare Report Card: NORD Grades All 50 States on Rare Disease Policy Issues”
Read morePublished February 17, 2022 by NORD
Organizations and individuals from across the country are partnering with NORD to help make a difference for rare disease patients and families on Rare Disease Day 2022 February 17, 2022, …
Read morePublished February 15, 2022 by NORD
Rare disease community eager to continue important partnership with FDA February 15, Washington, DC – Today, the National Organization for Rare Disorders (NORD) President and CEO Peter Saltonstall issued the …
Read morePublished January 20, 2022 by NORD
RareLaunch provides critical hands-on learning and support to build capacity for rare disease-focused organizations January 20, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced enhanced …
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