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February 22, 2022

TOPIC: State Report Card, Press Releases, Advocacy

A Rare Report Card: NORD Grades All 50 States on Rare Disease Policy Issues

Posted at February 2, 2022 08:00 am by Rohan Narayanan

NORD’s State Report Card Provides Critical Analysis Across Nine Policy Areas, Including Telehealth, Drug Costs, Medicaid Eligibility, and More

February 22, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) published the latest edition of its annual State Report Card, which rates all 50 states and Washington, DC on the most important issues affecting the more than… Read More

January 27, 2021

TOPIC: State Report Card, Press Releases, Medicaid, Featured News, Advocacy

NORD State Report Card Grades States on Policy Issues Critical to Rare Disease Patients

Posted at January 1, 2021 09:25 am by Valaree DonFrancesco

Washington, DC, January 27, 2021Today, the National Organization for Rare Disorders (NORD®) and its Rare Action Network (RAN™) published the 6th Edition of the State Report Card, the annual report rating each state and Washington, DC on the most important issues directly affecting more than 25 million AmericanRead More