October 15, 2020
TOPIC: Featured News, Patients & Members, Advocacy, COVID-19
NORD Issues Report on Ensuring Access to Telehealth for Rare Diseases
Posted at October 10, 2020 06:38 pm by Jennifer Huron

For those in the rare community, one of the few positives that have come from the global COVID-19 pandemic has been the wider availability of telehealth services. Through surveys, virtual discussion groups and direct advocacy efforts, NORD has continued to track rare patients’ and caregivers’ use of and experience with telehealth. The findings from NORD’s work are gathered in… Read More